Table 2 Results by dystrophic epidermolysis bullosa (DEB) subtype

Iron deficiency

10/12

3/10

1/4

0/1

Undernutrition (BMI < 18,5 kg/m²)

6/10 (no data for 2 patients)

0/6 (no data for 4 patients)

0/2 (no data for 2 patients)

0/1

Anemia

9/12

2/10

0

0/1

Regular gynaecological follow-up: < every 2 years

6/12

5/10

3/4

0/1

Have never seen a gynaecologist

6/12

3/10

1/4

0/1

Irregular follow-up > every 2 years

0/12

2/10

0

1/1

Menstruations

Yes and regular periods

Yes and irregular periods

No

Causes

7/12

2/12

3/12

3/3: Estrogen plus progestin pill continuously or continuous progestin-only pill

4/10

0/10

6/10

3/6 Estrogen plus progestin pill continuously or continuous progestin-only pill

2/6: Menopause

1/6: Unexplained amenorrhoea

3/4

0/4

1/4

1/1: Menopause

0/1

0/1

1/1

1/1: Menopause

Sexual intercourse

 > 1 time/week

 > 1 time/month

About 1 time/year

Only one sexual intercourse

Unknown intercourse frequency

5/12

1/5

1/5

2/5

1/5

8/10

0/10

6/8

1/8

0/8

1/8

3/4

0/3

2/3

0/3

0/3

1/3

1/1

0/1

0/1

0/1

0

1/1

Difficulty during intercourse (dyspareunia, stenosis, apprehension, sores)

3/5

7/8

0/3

No information

Women who had pregnancies

Vaginal delivery

Cesarean section

1/12

0/12

1/12

5/10

3/5

2/5

3/4

2/3

1/3

1/1

1/1

0/1

Lesion of the vulva at the time of the examination

Examination not performed

5/12

2/12

3/10

1/10

3/4

0/4

0/1

1/1