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Table 1 Caregiver demographics

From: The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey

Demographic variables

N = 105

Age in years, mean (SD)

43.0 (10.5)

Sex (male), n (%)

11 (10.5%)

Race, n (%)

   Asian

7 (6.7%)

   Black or African American

3 (2.9%)

   Hispanic or Latino

8 (7.6%)

   White

88 (83.8%)

Current work situation, n (%)

   Working full time for pay (employed or self-employed)

38 (36.2%)

   Working part time for pay (employed or self-employed)

22 (21.0%)

   Student

3 (2.9%)

   Unemployed

8 (7.6%)

   On long-term sick leave

1 (1.0%)

   Retired

3 (2.9%)

   Homemaker

26 (24.8%)

   Other

4 (3.8%)

Level of education, n (%)

   High school degree

2 (1.9%)

   Some college or associate  degree

28 (26.7%)

   Bachelor’s degree

41 (39.0%)

   Postgraduate degree

33 (31.4%)

   Other/Not reported

1 (1.0%)

Caregiving-related variables

Relationship to the person with AS, n (%)

   Mother or father

105 (100.0%)

Caregiver responsibilities, n (%)

   Primary caregiver

79 (75.2%)

   Secondary caregiver

2 (1.9%)

   Evenly splits responsibilities with another household member

24 (22.9%)

  1. AS Angelman syndrome; SD standard deviation