How does a preference-based generic health-related quality of life measure perform in patients with a rare disease? Measurement properties of the EQ-5D-Y proxy version among underage patients with neurofibromatosis type 1

Table 5 Shannon index and Shannon evenness of EQ-5D-Y

	EQ-5D-Y
	Mobility	Looking after him/herself	Doing usual activities	Having pain or discomfort	Feeling worried, sad or unhappy
Shannon index	0.60	0.79	0.98	1.20	1.23
Shannon evenness index	0.38	0.50	0.62	0.76	0.78

ISSN: 1750-1172