Table 2 Number of significant results showing a poorer situation for individuals living with a rare disease (cases) per results and per studies
From: Employment and work ability in individuals living with rare diseases: a systematic literature review
Main categories of outcomes | Sub-categories of outcome | Detailed types of outcomes (N = 117) | N. of significant results showing a poorer situation for cases* (N = 84/117) | N. of studies with at least one significant result showing a poorer situation for cases (N = 34/44) |  |
|---|---|---|---|---|---|
Employment status (69 results in 38 studies) | Employment (29 results in 22 studies) | Being active (Y/N; Yes: whether employed or seeking work), N = 1 | 0 | 15 |  |
Being employed (Y/N; Yes: whether paid or not), N = 16 | 11 | ||||
Being in paid work (Y/N; Yes: receiving income from work), N = 6 | 3 | ||||
Being full time employed (Y/N), N = 2 | 1 | ||||
Being part time employed (Y/N), N = 4 | 2 | ||||
Unemployment (21 results in 15 studies) | Being inactive (Y/N; Yes: whether disabled, student, housewife, retired, other), N = 4 | 3 | 10 |  | |
Being unemployed (Y/N; Yes: seeking work or unemployed because of health), N = 5 | 1 | ||||
Seeking work (Y/N), N = 5 | 3 | ||||
Being unemployed because of health, receiving a pension or not (Y/N), N = 7 | 6 | ||||
Disability (19 results in 16 studies) | Being disabled, receiving a pension or not (Y/N; Yes: short- or long-term disabled), N = 3 | 2 | 14 |  | |
Receiving a disability pension (Y/N; Yes: short- or long-term disability pension), N = 10 | 9 | ||||
Number of days with a short- or long-term disability pension, N = 6 | 5 | ||||
Work ability or Work loss in employed individuals (47 results in 21 studies, including 41 results in 20 studies for Work ability and 6 results in 5 studies for Work loss) | Work ability: Absenteeism (29 results in 20 studies) | Reporting missed work time because of health problems (Y/N (Yes: at least 1 h or 1 day of missed work time) or proportion of missed work time (% of hours or days over a given period)), N = 13 | 8 | 18 |  |
Being on sick leave (Y/N or number of days), N = 11 | 9 | ||||
Being on long-term sick leave (Y/N; Yes: > 2 weeks sick-leave or proportion of time over a given period), N = 5 | 5 | ||||
Work ability: Presenteeism (12 results in 6 studies) | Feeling impaired at work because of health (Y/N), N = 4 | 3 | 6 |  | |
Proportion of self-perceived impairment (Proportion of working time feeling impaired at work because of health), N = 6 | 5 | ||||
Proportion of self-perceived work capacity/productivity (Physical or mental, usually represented with a score), N = 2 | 2 | ||||
Work loss Combination of disability and absenteeism (6 results in 5 studies) | Work loss because of health problems or disability (Reported work loss (Y/N) or proportion of work loss, N = 6 | 5 | 5 |  |