From: Leber hereditary optic neuropathy: utilities and carer burden from British and Irish participants
Total sample (N=362) | UK sample (N=301) | ROI sample (N=61) | ||||
Mean | Range | Mean | Range | Mean | Range | |
Age | 46.47 | 18- 87 | 47.81 | 18- 87 | 39.89 | 20-74 |
Freq. | Percent | Freq. | Percent | Freq. | Percent | |
Gender | ||||||
Female | 183 | 50.6 | 152 | 50.5 | 31 | 50.8 |
Male | 175 | 48.3 | 145 | 48.2 | 30 | 49.2 |
Identifies in another way | 4 | 1.1 | 4 | 1.3 | - | - |
Location | ||||||
England | 262 | 72.4 | 262 | 87.0 | - | - |
Scotland | 26 | 7.2 | 26 | 8.6 | - | - |
Wales | 7 | 1.9 | 7 | 2.3 | - | - |
Northern Ireland | 6 | 1.7 | 6 | 2.0 | - | - |
Republic of Ireland | 61 | 16.9 | - | - | 61 | 100 |
Living situation | ||||||
Living with partner/spouse | 204 | 56.4 | 168 | 55.8 | 36 | 59.0 |
Living alone | 84 | 23.2 | 79 | 26.3 | 5 | 8.2 |
Living with relatives | 45 | 12.4 | 33 | 11.0 | 12 | 19.7 |
Other | 29 | 8.0 | 21 | 7.0 | 8 | 13.1 |
Employment | ||||||
Employed, full-time | 177 | 48.9 | 138 | 45.9 | 39 | 63.9 |
Employed, part-time | 72 | 19.9 | 63 | 20.9 | 9 | 14.8 |
Retired | 59 | 16.3 | 57 | 18.9 | 2 | 3.3 |
Unemployed | 23 | 6.4 | 19 | 6.3 | 4 | 6.6 |
Student | 13 | 3.6 | 8 | 2.7 | 5 | 8.2 |
Other | 18 | 5.0 | 16 | 5.3 | 2 | 3.3 |
Diagnosis of a chronic illness | ||||||
No | 221 | 61.1 | 180 | 59.8 | 41 | 67.2 |
Yes | 141 | 39.0 | 121 | 40.2 | 20 | 32.8 |