From: Leber hereditary optic neuropathy: utilities and carer burden from British and Irish participants
Total sample (N=120) | UK sample (N=100) | ROI sample (N=20) | ||||
Mean | Range | Mean | Range | Mean | Range | |
Age | 46.48 | 20-87 | 48.25 | 20-87 | 37.65 | 21-53 |
Freq. | Percent | Freq. | Percent | Freq. | Percent | |
Gender | ||||||
Female | 64 | 53.3 | 53 | 53.0 | 11 | 55.0 |
Male | 55 | 45.8 | 46 | 36.0 | 9 | 45.0 |
Identifies in another way | 1 | 0.8 | 1 | 1.0 | - | - |
Location | ||||||
England | 87 | 72.5 | 87 | 87.0 | - | - |
Scotland | 7 | 5.8 | 7 | 7.0 | - | - |
Wales | 4 | 3.3 | 4 | 4.0 | - | - |
Northern Ireland | 2 | 1.7 | 2 | 2.0 | - | - |
Republic of Ireland | 20 | 16.7 | - | - | 20 | 100 |
Living situation | ||||||
Living with partner/spouse | 61 | 50.8 | 49 | 49.0 | 12 | 60.0 |
Living alone | 33 | 27.5 | 32 | 32.0 | 1 | 5.0 |
Living with relatives | 12 | 10.0 | 10 | 10.0 | 2 | 10.0 |
Other | 14 | 11.7 | 9 | 9.0 | 5 | 25.0 |
Employment | ||||||
Employed, full-time | 62 | 51.7 | 49 | 49.0 | 13 | 65.0 |
Employed, part-time | 25 | 20.8 | 22 | 22.0 | 3 | 15.0 |
Retired | 17 | 14.2 | 17 | 17.0 | - | - |
Unemployed | 5 | 4.2 | 4 | 4.0 | 1 | 5.0 |
Student | 4 | 3.3 | 2 | 2.0 | 2 | 10.0 |
Other | 7 | 5.8 | 6 | 6.0 | 1 | 5.0 |
Diagnosis of a chronic illness | ||||||
Yes | 45 | 37.5 | 41 | 41.0 | 4 | 20.0 |
No | 75 | 62.5 | 59 | 59.0 | 16 | 80.0 |