Table 5 Sample characteristics of carers
From: Leber hereditary optic neuropathy: utilities and carer burden from British and Irish participants
Total sample (N = 9) | |
Mean (range) | |
Age | 48.3 (30-70) |
Freq. (Percent) | |
Gender | |
Female | 8 (88.9%) |
Male | 1 (11.1%) |
Relationship to care recipient | |
Parent | 5 (55.6) |
Partner or spouse | 3 (33.3) |
Sibling | 1 (11.1) |
Carer LHON diagnosis | |
Yes | 0 (0%) |
No | 9 (100%) |
Mean (Range) | |
Age | 32.0 (17-73) |
Age at diagnosis | 22.6 (9-58) |
Freq. (Percent) | |
Gender | |
Female | 3 (33.3) |
Male | 6 (66.7) |
Treatment history | |
Idebenone (private) | 3 (33.3) |
Idebenone (clinical trial) | 3 (33.3) |
GS010 | 1 (11.1) |
Other | 3 (33.3) |
Carer reported severity of vision loss | |
Very mild | 0 (0.0) |
Mild | 0 (0.0) |
Moderate | 3 (33.3) |
Severe | 3 (33.3) |
Very severe | 3 (33.3) |
Other health conditions | |
Yes | 3 (33.3) |
No | 6 (66.7%) |