From: Caregivers’ experiences and challenges of the diagnostic odyssey in Dravet syndrome
Characteristics | N (%) |
---|---|
Sex | |
female | 54 (50.9) |
male | 52 (49.1) |
Age (in years) | |
Range | 0.9–35 |
Mean(SD) | 10.8 (6.5) |
Median | 10.0 |
A time when the first symptoms appeared | |
The neonatal period (first month of life) | 2 (1.9) |
2–5 months of age | 44 (41.5) |
6–12 months of age | 56 (52.8) |
1–3 years of age | 4 (3.8) |
Type of symptoms that initiated the diagnostic process* | |
neurological | 103 (97.2) |
immunological | 3 (2.8) |
cardiovascular | 2 (1.9) |
nephrological | 2 (1.9) |
gastrointestinal (digestive) | 1 (0.9) |
motor | 4 (3.8) |
cognitive | 2 (1.9) |
general development | 7 (6.6) |
other | 3 (2.8) |